Daily Archives: 23 March, 2010

Integrating Primary and Mental Health Care

The increased integration of mental health care into primary care is one of my pet issues. Currently, primary care providers (PCPs), also called general practitioners, provide over half of mental health treatment in the United States – which results in up to 50% of mental health problems going unindentified, undiagnosed, and untreated through the primary care system. This is a wasted opportunity, as PCPs have significant opportunities to identify behavioral health problems early and provide interventions and treatments to prevent further deterioration.

This indicates a significant split between the physical health care and mental health care systems, where people are expected to go to their PCP for physical health issues and to self-refer to a mental health care clinic or specialist for mental health treatment. This is problematic for a whole host of reasons – primary among them the simple fact that this system simply isn’t working – even though the prevalence of mental disorders in primary care is somewhat higher than the overall population, PCPs are ineffective at identifying those people and providing them with treatment. Expecting people to identify themselves as experiencing a mental disorder, overcoming societal stigma to seek diagnosis and treatment, and assuming they have the ability to access mental health services through a fragmented and poorly financed system erects barriers to treatment that are likely insurmountable to someone experiencing an untreated mental health problem. Unsurprisingly, these barriers are likely more pronounced for already vulnerable populations such as the elderly and low-income minorities.

There are a lot of benefits to better integration of mental health care into the PCP’s role. The PCP is usually the patient’s first contact with the health care system and an individual is much more likely to know how to access care from a PCP than from an unintegrated mental health system. Patients are often more willing to attend appointments with and follow up with their PCPs because of the removal of stigma from receiving treatment. Other patients may not have meaningful access to a separate or nonintegrated mental health system, either due to financial barriers, long waiting lists, or other barriers.

The most significant problem, in my view, is the expectation that an individual should be able to determine they are experiencing a mental health problem. Given that the majority of PCPs, who have medical degrees and extensive training, fail to identify and diagnose mental health issues, expecting untrained laypeople to do so – while they are experiencing the mental health problem – is beyond absurd. It is even more absurd given that many mental health issues have a physical component. Depression results in fatigue and appetite changes, as does mania. The physical experience of a panic attack is often interpreted as a heart attack. Auditory or visual hallucinations could easily be interpreted as problems with the sensory organs themselves. This is sometimes heightened by an individual’s cultural context, as many Asian cultures describe the experience of depression almost exclusively in physical terms. Expecting an affected individual to untangle the complicated interplay of physical and mental effects and diagnose themselves with a mental health problem prior to seeking treatment is bound to fail.

Another argument in favor of integration is the huge overlap between physical and mental health problems. Estimates of this comorbidity vary wildly, but range somewhere from 20% to 80% of primary care patients (useful data, no?). Having a patient access two separate mental health care systems for their treatment ensures fragmented treatments that may contradict each other and are certainly not coordinated for maximum effect. Better integration would ensure treatments for physical and mental health issues complemented each other and treated the patient as a whole person.

This seems like an uncontroversial and common sense suggestion. It was embraced by the United States Surgeon General in 2001 and by the World Health Organization in 2008, but has seen little progress or momentum since then. Some local treatment systems are taking steps towards integration, such as these trainings done by the British Columbia health system, but there have been few steps towards addressing this issue in the larger health system.

Recommended Reading for March 23, 2010

Yes I Am:

And that’s the heart of it. I don’t want anyone to think I’m lazy. I’m already working part time because I simply cannot cope with full time work any more, and I can’t stand the questions I get about it. I’m not open about my health conditions, and I have no acceptable answer when I’m asked what I do when I’m not at work. I’m not studying. I’m not bringing up children. What’s my excuse?

I have been doing so much soul-searching lately, and trying to come to terms with all the changes that have been going on. Trying to come to terms with the word disabled. I still can’t say it out loud, you know, that I have disabilities. A workmate once laughed when I mentioned something about disability discrimination, because I’m not in a wheelchair or anything. Of course I’m not disabled.

I don’t think you understand the concept here: [Comments recommended]

When I call you to complain that the road repairs on State Road 50 have made the State Road 50 and S Park intersection unsafe for wheelchair users, pedestrians and bicyclists, and has already resulted in injuries, the proper response is not, “I guess you’ll just have to drive for awhile.”

In the news:
UK: Wheelchair-bound woman told to take train to reach opposite platform [Headline fail.]

Julie Cleary, 53, was hoping to use a new £2.8 million lift at Staplehurst train station in Kent so she could get out of the station after a day trip to London but was told she could not use it because of “health and safety”.

Miss Cleary was told instead to catch a train to Ashford International Station, 15 miles away, and back so she would end up on the right platform which was just 20 yards away.

Australia: Parliament House not ready for Kelly [Thanks Deborah!]

KELLY Vincent is set to win an Upper House seat, but at this stage she physically cannot get there.

While the final results could still be weeks away, the Dignity 4 Disability candidate is the likely winner.

At 21, she will become the youngest female elected to Parliament.

She is also believed to be the first person in a wheelchair, but Parliament House is not yet disability-friendly enough for her to make her way to the chamber.

US: Paralyzed Graffiti Artist Draws With His Eyes

A group of artists and hackers have crafted a gadget that lets a paralyzed graffiti artist continue making art using only his eyes. And it costs about as much as an iPod shuffle.

Zach Lieberman of the Graffiti Research Lab started working on the EyeWriter with one man in mind: Los Angeles-based graffiti artist Tony Quan. In 2003, Quan was diagnosed with Lou Gehrig’s disease, leaving virtually every muscle in his body paralyzed except for his eyes. Lieberman and developers from Free Art and Technology, OpenFrameworks and the Ebeling Group were inspired to create low-cost, open-source hardware and software for eye-tracking to help Quan draw again.

Recommended Reading

Please do not be on my side

The American Academy of Pain Medicine wants better treatment of chronic pain. So do I.

I hate that fucking joke so much.

World, please stop saying, “Achieving [something you think is awesome but it’s actually pathetic] is like winning a gold medal at the Special Olympics!”

A Special Olympics gold medal is not a dummy prize. It is awarded to world-class* athletes who have managed to beat dozens of other world-class athletes to achieve a distinction to which very few people can aspire. Special Olympics gold medallists think their medals are awesome because they actually are awesome.

March 15: Sue Boyce (b: 1951):

Happy birthday to Australian senator from Queensland, Sue Boyce, who has made disability rights issues a priority of her legislative work. She’s currently serving on the committee to consider Australian immigration laws on the subject of disability.

Should the Social Model of Disability permit Autism treatment?

Sometimes, it is hard to differentiate between direct and indirect consequences of a condition, between impairments and disabilities. IP uses autism as an example of a condition that doesn’t create intrinsic suffering, and I commented that I disagreed there, although this issue is hotly debated within the autistic community. I, for one, suffer from chronic overload, which does not always have a known trigger. It could be that, in an ideal world with low stimulation, I would not suffer from this symptom, but I often cannot tell exactly why I suffer from overload.

Please don’t say you’re sorry

Becoming committed to surviving cancer was not an easy feat. Dealing with other people’s reaction to my cancer was one of the things that made it an especially difficult process. When the people around you are treating you like you’re already on death’s door, it can be hard to see past the fatalism. If I had a dime for every person that said “I’m so sorry” or “Poor baby!” when they found out I had cancer, I’d be richer than Bill Gates.

Time to die? Plus Assembly, Bunnies, PJs and a lovely coffin:

People often have two responses when I talk about my disease and the pain, one is to ignore, like I never talked. The idea that it hey it is just Elizabeth, ‘EFM’ after all, and her condition is weird and painful (and thus somehow pain is okay..for ME). This is set up socially in terminal disease culture where immediately the HEALTHY person is given counseling, has a stack of books of dealing with THEIR pain. There aren’t really any books on dealing with pain of terminal levels, or the path one has to take in order to live while dying. The attitude is, ‘They will be dead so….’ – what is unspoken is, ‘so YOUR pain, you healthy people, at their loss needs to be addressed as does the horror of those late nights of groans and agony we will never know’. For those who HAVE the groans and agony, the idea that only the person NOT in pain is having ‘issues’ is a rather hurtful one emotionally.