9 responses to “A Moment In the Grocery Store”

  1. hsofia

    Rendering some people in our society invisible is so commonplace. The only other people I see this kind of thing happen to on a regular basis are children. They also often get talked *about* (but not with), and are not introduced as equals.

  2. Mcfly

    hsofia – yes, totally! My mother still disappears me like that all the time. I’m pretty sure it’s the “child” thing (despite the fact that I’m a grown-ass woman now) not the disability thing, but it’s hard to know for sure which is causing her to treat me like that.

  3. Astrid

    I always assumed that the not introducing PWDs to other people was some kind of professional ethic among aides. Something about confidentiality (like, Nina is not your friend so maybe it’s none of your business that Karen is her aide). When I am with some kind of professional helper, they don’t introduce me to anyone they meet either, and it never occurred to me that this would be out of ableism.

  4. Bri

    While it can be different to the a situation involving a PWD and their aide, I used to work as a Foster Care case manager (often with children and young people with disabilities) and we were strictly not permitted to introduce the children to ANYONE who wasn’t a professional directly involved in their case management. It didn’t matter if I was down the mall with the child/young person or where I was. I wasn’t allowed to identify the child in any way, or allude to the fact that I was their case manager or anything remotely like that. Most times it was fairly easy as I didn’t wear a uniform of any sort and I could keep my staff ID under my shirt but I hated that I had to basically ignore what I consider to be good manners by not introducing the child I was with when I encountered someone or if someone asked. Eventually I decided I would introduce the child as ‘my friend’ if I did encounter someone and if the child decided to introduce themselves by name then I wasn’t about to stop them. I figured it was their right to tell someone what their name was! Part of the issue is that this (where I live and worked) is a small town and people knew what field I worked in and so could make assumptions about any child I was seen with (that they knew wasnt my own child), thus violating the client’s right to privacy. A total minefield. It was all about confidentiality and the like but it did often makes things quite impersonal.

  5. freakingdork

    I’m with Astrid and Bri on this one.

    Due to HIPAA laws, when I’m working as an aide, I’m not allowed to introduce my clients to people I know (and in fact am supposed to not really talk to people I know/walk off when the situation presents itself) and I’m not allowed to introduce myself to people that my client knows (though they may choose to introduce themselves or introduce me). I’m also not allowed to identify that I’m working. These guidelines have been in place at my old job (where I was working with people with developmental disabilities), as well as at my new job (working with people with brain and spinal cord injuries).

    I basically face rather large fines (the situation you described could be 100$ min if she didn’t know (and “couldn’t” have known) she was violating HIPAA, but due to all the classes and inservices we have to go through about these laws, it’s likely that it would be the next category, which is a 1,000$ minimum…by the feds…and my employer would likely be fined as well), losing my job, etc. for violating HIPAA laws (even for doing something like leaving my paperwork in my car…and then my car gets stolen…I can still get fined/fired for that). Rightfully so (even if they do cause a complete minefield of issues in small towns, with regards to polite gestures of introducing others like in this post, and in other situations), as they are in place to protect privacy of the PWD.

  6. hsofia

    @freakingdork – Wow! Good (for me) to know.

  7. Ann

    The same goes for my sweetie’s caregivers. When we bump into these lovely people off the job, they’re often with their other clients, who they are strictly forbidden to introduce. In fact, their agency tells them not even to greet us (as other clients) which seems a bit over the top to me. Regardless, it’s privacy centered.

    It’s not a perfect world. I just make an effort to make warm eye contact if the other client seems remotely interested.

  8. freakingdork

    @Ann: Yep. If I see a client outside of a work setting, I am not allowed to greet them unless they greet me first. I do try to give them warm eye contact though, so they don’t think I’m being rude/ignoring them.

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