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	<title>Comments on: Who Shall Remain Nameless: The Othering of PWD</title>
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	<link>http://disabledfeminists.com/2010/02/05/who-shall-remain-nameless-the-othering-of-pwd/</link>
	<description>FWD (feminists with disabilities) for a way forward</description>
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		<title>By: kaninchenzero</title>
		<link>http://disabledfeminists.com/2010/02/05/who-shall-remain-nameless-the-othering-of-pwd/#comment-8061</link>
		<dc:creator>kaninchenzero</dc:creator>
		<pubDate>Fri, 19 Feb 2010 07:06:26 +0000</pubDate>
		<guid isPermaLink="false">http://disabledfeminists.com/?p=2825#comment-8061</guid>
		<description>At least we know what to put on the name tags at the FWD convention.  They&#039;ll all read &quot;ANONYMOUS HATER&quot;.  It&#039;ll be epic.</description>
		<content:encoded><![CDATA[<p>At least we know what to put on the name tags at the FWD convention.  They&#8217;ll all read &#8220;ANONYMOUS HATER&#8221;.  It&#8217;ll be epic.</p>
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		<title>By: lauredhel</title>
		<link>http://disabledfeminists.com/2010/02/05/who-shall-remain-nameless-the-othering-of-pwd/#comment-8055</link>
		<dc:creator>lauredhel</dc:creator>
		<pubDate>Fri, 19 Feb 2010 05:31:51 +0000</pubDate>
		<guid isPermaLink="false">http://disabledfeminists.com/?p=2825#comment-8055</guid>
		<description>Ohyes, Anna. I&#039;m getting pretty close to white-hot on that one. And it&#039;s coming &lt;i&gt;from all sides&lt;/i&gt;.</description>
		<content:encoded><![CDATA[<p>Ohyes, Anna. I&#8217;m getting pretty close to white-hot on that one. And it&#8217;s coming <i>from all sides</i>.</p>
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		<title>By: Anna</title>
		<link>http://disabledfeminists.com/2010/02/05/who-shall-remain-nameless-the-othering-of-pwd/#comment-8019</link>
		<dc:creator>Anna</dc:creator>
		<pubDate>Thu, 18 Feb 2010 22:45:24 +0000</pubDate>
		<guid isPermaLink="false">http://disabledfeminists.com/?p=2825#comment-8019</guid>
		<description>For reasons that are probably obvious to you, Lauredhel, I&#039;ve come back to this post today.</description>
		<content:encoded><![CDATA[<p>For reasons that are probably obvious to you, Lauredhel, I&#8217;ve come back to this post today.</p>
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		<title>By: Jesse the K</title>
		<link>http://disabledfeminists.com/2010/02/05/who-shall-remain-nameless-the-othering-of-pwd/#comment-7512</link>
		<dc:creator>Jesse the K</dc:creator>
		<pubDate>Fri, 05 Feb 2010 21:54:14 +0000</pubDate>
		<guid isPermaLink="false">http://disabledfeminists.com/?p=2825#comment-7512</guid>
		<description>Thank you for drawing attention to this silencing, which is sadly almost universal towards people with developmental disability labels. Lucy Gwin, who spearheaded an outstanding rabble-rousing disability-rights magazine called &lt;a href=&quot;http://www.mouthmag.com/abtmouthmag.htm&quot; rel=&quot;nofollow&quot;&gt;MOUTH&lt;/a&gt;, suggested that the best new name for &quot;folks like us&quot; was &quot;the dislabeled.&quot;

This is one of the reasons why activists have targeted the elimination of the &quot;r-word.&quot;
The negative valence of the epithet has splashed even more stigma backwards on the people who have been so labeled. News organizations don&#039;t notice how odd it is that they have omitted the names of some of those in attendance, because they&#039;re &lt;em&gt;those people&lt;/em&gt;. We don&#039;t &lt;em&gt;mention&lt;/em&gt; those people; they don&#039;t have names or histories. 

There&#039;s one more factor, at least in the U.S. In the past decade the government has enacted Privacy Rules regarding health care information. Because our lives have been medicalized, some important information about us is covered by these guidelines. These &lt;a href=&quot;http://www.privacyrights.org/ar/HIPAA-Reading.htm&quot; rel=&quot;nofollow&quot;&gt;HIPAA guidelines are famously difficult&lt;/a&gt; to understand. For example, the list of people who use paratransit buses in our city is a &quot;medical record&quot;&#8212;coincidentally, this makes it more difficult to organize riders for better service. I think that the societal touchiness about HIPAA records may also be feeding into the silencing of names like Julie Petty and Ricardo Thornton.</description>
		<content:encoded><![CDATA[<p>Thank you for drawing attention to this silencing, which is sadly almost universal towards people with developmental disability labels. Lucy Gwin, who spearheaded an outstanding rabble-rousing disability-rights magazine called <a href="http://www.mouthmag.com/abtmouthmag.htm" rel="nofollow">MOUTH</a>, suggested that the best new name for &#8220;folks like us&#8221; was &#8220;the dislabeled.&#8221;</p>
<p>This is one of the reasons why activists have targeted the elimination of the &#8220;r-word.&#8221;<br />
The negative valence of the epithet has splashed even more stigma backwards on the people who have been so labeled. News organizations don&#8217;t notice how odd it is that they have omitted the names of some of those in attendance, because they&#8217;re <em>those people</em>. We don&#8217;t <em>mention</em> those people; they don&#8217;t have names or histories. </p>
<p>There&#8217;s one more factor, at least in the U.S. In the past decade the government has enacted Privacy Rules regarding health care information. Because our lives have been medicalized, some important information about us is covered by these guidelines. These <a href="http://www.privacyrights.org/ar/HIPAA-Reading.htm" rel="nofollow">HIPAA guidelines are famously difficult</a> to understand. For example, the list of people who use paratransit buses in our city is a &#8220;medical record&#8221;&mdash;coincidentally, this makes it more difficult to organize riders for better service. I think that the societal touchiness about HIPAA records may also be feeding into the silencing of names like Julie Petty and Ricardo Thornton.</p>
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		<title>By: Assiya</title>
		<link>http://disabledfeminists.com/2010/02/05/who-shall-remain-nameless-the-othering-of-pwd/#comment-7498</link>
		<dc:creator>Assiya</dc:creator>
		<pubDate>Fri, 05 Feb 2010 16:01:36 +0000</pubDate>
		<guid isPermaLink="false">http://disabledfeminists.com/?p=2825#comment-7498</guid>
		<description>Thank you so much for posting this.

In the realm of fail, I especially enjoyed (*note sarcasm*) that the New York Times felt it was important to talk about the name change of The Arc, which happened 20 years ago, but that it was not important to include the names of the self advocates.</description>
		<content:encoded><![CDATA[<p>Thank you so much for posting this.</p>
<p>In the realm of fail, I especially enjoyed (*note sarcasm*) that the New York Times felt it was important to talk about the name change of The Arc, which happened 20 years ago, but that it was not important to include the names of the self advocates.</p>
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