Daily Archives: 5 February, 2010

Chatterday! Open Thread.

transparent-skinned frog, hanging from a twig. The frog's internal organs are visibleThis is our weekly Chatterday! open thread. Use this open thread to talk amongst yourselves: feel free to share a link, have a vent, or spread some joy.

What have you been reading or watching lately (remembering spoiler warnings)? What are you proud of this week? What’s made your teeth itch? What’s going on in your part of the world? Feel free to add your own images. (Anna insists that these should only be of ponies, but I insist that very small primates, camelids, critters from the weasel family, smooching giraffes, and cupcakes are also acceptable.) Just whack in a bare link to a webpage, please – admin needs to deal with the HTML code side of things.

Today’s chatterday backcloth, a endangered transparent-skinned “glass frog” from the South American rainforest, comes from National Geographic, via Neatorama.

Who Shall Remain Nameless: The Othering of PWD

Julie Petty.

Ricardo Thornton.

These are the names of the self-advocates who joined Special Olympics CEO Shriver and others in asking Rahm Emanuel to apologise for his use of the R Word, and to join the R-Word campaign (the original R-Word campaign is here).

But you’ll be hard pressed to find that info in most of the papers. They’ve been erased. Relegated to “other…”.

A P.S., at best.

What we’re hearing, instead, is that Emanuel apologised to Shriver, and Shriver accepted his apology. A few examples:

LA Times:

[Emanuel] apologized and met privately this week with half a dozen advocates for people with disabilities, including Timothy Shriver, chairman and chief executive of the Special Olympics.

HuffPo (who also published “Rage Against Rahm Was, Well, “Retarded”“, by a “humourist”):

Special Olympics Chairman and CEO Timothy Shriver personally accepted an apology from White House Chief of Staff Rahm Emanuel on Wednesday, days after comments surfaced in which Emanuel used the word “retarded” to describe a proposal made by a group of liberal Democrats.

According to a joint statement from Shriver and five other disability advocates who attended a meeting at the White House, Emanuel “sincerely apologized for his mistake and the pain it caused in our community.”

ABC News:

After the Journal story was published, Emanuel called Special Olympics Chairman and CEO Timothy Shriver to apologize.

Shriver and four other advocates for the disabled community will meet with Emanuel at the White House at 2:00 PM tomorrow, Wednesday February 3, 2010.

New York Times:

Mr. Emanuel apologized to Tim Shriver, the CEO of the Special Olympics, but today went one step further, by meeting for about 30 minutes in his West Wing office with Mr. Shriver and other advocates, including leaders of groups like The American Association of People with Disabilities and The Arc, which changed its name nearly 20 years ago from the Association for Retarded Citizens.

Washington Post:

In a statement after an afternoon meeting at the White House, Shriver and five other disability rights advocates said Emanuel had “sincerely apologized” for the earlier comment during a strategy meeting, which was reported in the Wall Street Journal.

Disability Scoop:

Special Olympics CEO Tim Shriver, Andrew Imparato of the American Association of People with Disabilities and Peter Berns, CEO of The Arc of the United States, were invited to the White House meeting. Two self-advocates and a parent advocate are also expected to attend.

Telegraph UK:

After a White House meeting, Mr Emanuel apologised to Tim Shriver, head of the Special Olympics, and other advocates for the mentally disabled.

The exceptions: The Wall Street Journal, and CBS. Kudos.

Recommended Reading for February 5th

Warning: Offsite links are not safe spaces. Articles and comments in the links may contain ableist, sexist, and other -ist language of varying intensity. Opinions expressed in the articles may not reflect the opinions held by the compiler of the post. I attempt to provide extra warnings for material like extreme violence/rape; however, your triggers/issues may vary, so please read with care.

Assiya at For a Fairer Today: “But I don’t see disableism very often”

A couple of months ago I tried talking to my best friend about why I find “Glee” ableist, which turned into a conversation about disableism in society. My best friend is a sociology major who always seems better at me at noticing failure around -isms. So I was shocked when she said she rarely sees disableism.

Amanda Forest Vivian at I’m Somewhere Else: The harder fallacy [spoilers for Precious]

I keep thinking about something my friend said after we watched Precious and I was talking about how the portrayal of the child with Down Syndrome was offensive. (I’m going to refer to the character as Quishay, which is the name of the little girl who played her.) My friend kept saying, “Well, it IS harder to raise a kid with Down Syndrome.” I said “Do you actually know any people with Down Syndrome, because if you did, I think you’d feel differently.” My friend was like, “What do you mean, do you think I wouldn’t think it’s harder to have Down Syndrome? It’s a DISABILITY. It’s not a good thing.

jackandahat in accessibility_fail: When the people who claim to help are the problem. [warning: violence wish expressed]

Right now I’m looking for work, and I’ve just been sent to an agency – Remploy – who deal with getting disabled people into work. […]

The other advisor – I don’t know his name, call him Stupid Fuck – picked up my cane and put it behind his back, and started giving a speech about how now no-one would know I was disabled, and I had to think of it like that.

lightgetsin at the light’s how they find you: So it turns out there are people with disabilities in fandom [warning: description of residential care neglect]

Except those three times I bit my tongue? Not a single one was actually about the content of what people were saying in response to the post. Every single time it was because people were responding to the post with the clear, unthinking default assumption that there were no people with disabilities in the comment thread.

It’s not about hate or disgust or any active form of discrimination. It’s about the silent, reflexive belief that you are all like me.

chaoticidealism: Baby Expectations

When baby-doll advertising doesn’t stick to just describing the doll’s features, it usually reflects the ideas that the general public seems to have about what raising a baby should ideally be like; and practically all of that is focused straight on what the baby will do for you. […]

What if, instead of babbling and cooing, Baby stares in fascination at the play of light on the dust motes in the air? What if, instead of kissing Mommy, Baby pulls back from the overwhelming touch and cries inconsolably? What if, instead of saying, “I love you, Mommy,” Baby recites the full script of her favorite Sesame Street episodes?

Nafisa Khanbhai: Dear Diary: The Story of a Disabled Asian Woman, Disability Studies Quarterly, Vol 29, No 4 (2009)

Having personally experienced a lot of discrimination from friends in the Asian community and at times from the extended family, I decided that it was time to prove my capabilities and create awareness about disability in my community. I went to work at the Rotaract Club for eight years. Rotaract is an organization that assists the needy in society and that includes the physically and mentally challenged. However, I noticed that the organization did not create awareness about those with special needs in society. Instead the organization runs on a simplistic, easy charity model — food, clothes, sometimes cash — a token approach that salves the giver’s conscience. Even though this approach might serve immediate needs, I knew that we needed to and could do more. And then that old problem cropped up again; persons with disabilities have no voice in my community, and being the only such member in the club made it difficult to express my views, and when I did they were not appreciated. I did not blame the other members since I understood that either they are different or I am, and naturally our views would also be different.

These encounters emboldened me in my yearning to create awareness for disability issues generally in Mombasa.

Stephanie Lyn Keil at A Grand Illusion: Is Neurodiversity Economically Feasible? How to Help

I agree with much of Neurodiversity’s philosophy but in their idealism they fail to grasp a couple of realities: the economic impact of their idealism being one of them […] If Neurodiversity wants their idealism to be a reality than they need to begin cutting costs in as many areas as possible.

Gender, health, and societal obligation

Kate Harding, writing at Broadsheet:

“If you ask us,” say Glamour editor Cindi Leive and Arianna Huffington, “the next feminist issue is sleep.” Personally, I never would have thought to ask those two what the next feminist issue is, but they make a pretty good case. “Americans are increasingly sleep-deprived, and the sleepiest people are, you guessed it, women. Single working women and working moms with young kids are especially drowsy: They tend to clock in an hour and a half shy of the roughly 7.5-hour minimum the human body needs to function happily and healthfully.” The negative effects of chronic sleep deprivation are well-documented, but that doesn’t inspire enough people to prioritize rest, and women often end up in a vicious cycle of sacrificing sleep in order to do extra work and make sure their domestic duties are fulfilled, causing all of the above to suffer. “Work decisions, relationship challenges, any life situation that requires you to know your own mind — they all require the judgment, problem-solving and creativity that only a rested brain is capable of and are all handled best when you bring to them the creativity and judgment that are enhanced by sleep.”

So many obligations are heaped on the shoulders of women, and it is pretty much impossible to fulfill all of them even if you completely neglect your own needs. Of course, trying to tend to your own needs means even fewer of those obligations fulfilled, and there are cries and admonishment of selfishness and failure and responsibility to others waiting for you should you assert your right to self-care, because by asserting the right to take time and energy exclusively for yourself, you are stealing time and energy that belongs to others.

Sleep is a contested act in American society (perhaps in others too, but I can only speak to the US): getting little of it becomes a point of pride; getting a lot of it is a symbol of laziness, selfishness, sloth, dirtiness, carelessness. People are expected to perform amazing tasks on as little sleep as possible, which is completely counterintuitive, because most people are going to perform worse with insufficient sleep — consider it a generalized manifestation of the supercrip phenomenon: exactly the people who are least supported/enabled to do something are the ones who are expected to do it better than normal people.

Better sleep would surely benefit many of us, but why?

According to Leive and Huffington, the main benefits realized are in service of others; the main beneficiaries are the people around you. Or, if you see the benefits, they are benefits that stem from an obligation to others, any self-benefit remaining firmly subordinate to the “greater good” of one’s family, colleagues and community members.

We should be well familiar with the concept of women as public property. Women’s bodies, women’s time, women’s possessions, women’s decisionmaking capacity, women’s self-determination — just about anything a woman possesses, though she doesn’t really possess. Rather, she is allowed use of something that is under her care but not her ownership: it belongs instead to the people around her.

Feminists are familiar with the idea that our society considers female reproductive organs to be public property. A woman’s vagina should be available for all comers (men), and simultaneously be unavailable so as not to waste its value to its eventual sole owner (a man). A woman’s uterus is to be used for the good of the human species/civilized society: the right kind of women are to reproduce as much as possible, so that their kind remain the dominant group in both pure numbers and in overall power. (On the other hand, the other kinds of women are called upon to perform the rough, menial work necessary to uphold modern society, while not polluting the human species by reproducing themselves.)

But honestly, public ownership of women extends so much further than their reproductive systems.

No woman is allowed to assume ownership of any part her physical self, her time or purpose: it is still an “indulgence” for a woman to eat anything more substantial than a leaf of lettuce, still “sinful” to enjoy less than 100 calories of overprocessed puddings and crackers. It is still somehow selfish to take a long bath or to sit and rest for an hour’s time, still slothful to refrain from moving, working, pushing, rushing every single moment of every day.

Women’s work, in general, is under-valued and un(der)paid — and it is uncompensated precisely because women’s time, their energy, their effort, do not actually belong to the women themselves, but rather to the rest of the world. It is theirs to use whenever, however, and however much they wish, and isn’t it ridiculous to suggest they should pay for the use of something that belongs to them in the first place?

This is all part and parcel of living in a patriarchy, a predictable result when society relies upon a person’s gender to determine hir position in society, the things sie will do, the roles sie will play, the direction hir life will take. But gender is not the only variant in play here. In fact, I believe that gender is actually secondary here to another factor — it is merely one avenue of manifestation for our cultural construction of health.

Surely you have heard of the theory that gender is not an inherent trait, but a performance. This theory is definitely not without flaws, but I bring it up in hopes that it provides a familiar framework for a discussion on the social construction of health.

Health, you see, is not merely an inherent trait. Health, instead, emcompasses a variety of factors, including a person’s intrinsic qualities but also the environment in which they operate and their everyday behaviors.

Health is not just what a person is. Health is also what a person does. And what drives a person to do something is not wholly internal, but rather is largely influenced by external factors.

Gender, for instance, is both an internal sense of being and something we do for other people, something we do because we want other people to think about us, react to us, in certain ways. And the things we do, and the expected reactions to them, are different depending on which culture we are operating in — dependent on where we live, on our ethnicity, on our class background, on any number of other things. What it means to wear certain types of clothing is different in different cultures. What it means to speak a certain way is different in different cultures. And so on.

This framework is — I hope — useful for understanding what health actually is.

The form “health” takes is different depending on the expectations of the culture you live in.

The ultimate importance of that so-defined “health” is different depending on the expectations of the culture you live in.

The role “health” plays in the culture, what “health” means in that culture, the way the people of that culture interact or engage with that idea of “health,” are different depending on the expectations of the culture you live in.

What you do to achieve “health” is different depending on the expectations of the culture you live in.

How your health affects your position in life, your economic opportunities, the support that is offered for you to live the kind of life you desire, are all different depending on the expectations of the culture you live in.

(And yes, all of this is just as true in a culture that makes use of the scientific method and sees itself as cool and rational. What is investigated, and how, and how the results are interpreted, and what lessons are drawn from those results, and how those lessons are applied in everyday life — all these things must grow out of the culture they happen in! )

Health, then, is not merely a personal state, but rather a cultural fulfillment. Health (of whatever kind) is expected of you, expected by the people around you. Your health is not your own, but instead belongs to your family, your community and your wider culture. You must achieve and maintain (whatever kind of) health, not because it benefits you personally, but because you will have deeply failed your fellow members of society if you don’t.

And this is what underlies the problematic aspect of Leive and Huffington’s statements. They are not suggesting that the sleep deficit for women is a problem because the woman herself feels fatigue or cognitive dysfunction. They are suggesting that the sleep deficit for women is a problem because the woman cannot fulfill the expectations of health — and the performance of duties that rely on that state of health — that society has for her. They are suggesting that the sleep deficit for women is a problem because then that woman personally fails her family, community and country.

Here, then, her lack of sleep lays bare her duty to society based on particular qualities she holds. But the disparity between her duty and her male peer’s duty would not exist if all of us did not have a duty to society to achieve and maintain a certain kind of health.

And Leive and Huffington, purporting to be advocating on women’s behalf, do nothing but reinforce the same system that screws women disproportionately when they center a woman’s obligations to the people around her over the personal experience of the woman herself.

And here, I hope, feminists will understand what disability activists mean when we talk about the supposed obligation of mentally ill people to submit to (certain kinds of) treatment for the sake of the rest of society — or what fat acceptance activists mean when we talk about the supposed obligation of all people to be as thin as possible for the sake of the rest of society — and so on.

Eating “healthy” (as determined by mainstream cultural wisdom, largely controlled by wealthy white temporarily-abled folk) is not done solely for oneself. Neither is “exercise” (of course, what counts as physical-activity-that-improves-health is controlled by the same people who control what counts as food-that-improves-health). Participation in the paid workforce is not done solely for oneself — we are, in part, fulfilling the obligation of “responsibility” (which is a component of the health performance, because when health is lacking, the ability to work declines — so work, then, is a demonstration that you are fulfilling your health obligation).

When a person neglects to fill a health-related obligation, there is someone there to remind them of the cost to the rest of society. We’ve all heard figures on the cost of obesity, the cost of heart problems, the cost of low employment rates, the cost of suboptimal nutrition, the cost of insufficient sexual education, the cost of lost sleep… wait, that sounds familiar. Anyway, the cost might be in dollar figures, might be in time lost, might be in persons participating in x activity, or might be more intangible: work decisions, relationship challenges, judgment, problem-solving, creativity… wait a second, didn’t we just hear that? Oh yeah.

And that’s what’s wrong with this angle. Ladies, you are hurting your families! You are failing your communities! You’re dragging all of society down with you! When all you have to do is get an extra hour of sleep — seriously, how selfish are you, staying up to get the dishes clean after your kids have gone to bed so that they’ll have clean bowls to eat cereal out of in the morning?

Except that the entire reason women are getting less sleep than they need is because they’re busy fulfilling their obligations to the rest of the world. The entire reason women are getting less sleep than they need is because they’re required to be well enough to handle multiple shifts, every single day, for their entire adult lives. The entire reason women are getting less sleep than they need is because they’re required to get up at stupid o’clock every morning to handle all the things they’re required to do before going to work (including the obligations to project an image of “health” — to look and smell fresh and clean, to be sufficiently hair-free, to wear attractive clothing, to possibly spend time putting on a face full of makeup and making her hair look presentable — all which are wrapped up in appearing healthy to the people around you), and when they get home from work they still have to do the laundry and make the dinner and wash the dishes and pick up the floor and wipe down the kitchen and bathroom counters and possibly wrangle kids or partners all the while —

— and then they are getting chided by self-proclaimed women’s advocates because they spend too much time doing things for other people, and not enough time doing things for oneself… for… other people…

And it’s impossible to separate the demands of womanhood from the demands of ability. It’s difficult to differentiate the hierarchy of value imposed on people of different genders from the hierarchy of value imposed on people of differing abilities.

I’m sure you get, by now, how women get completely and utterly screwed in this situation. But I invite you to imagine, then, how disabled people get completely and utterly screwed by this situation — and then I invite you to imagine how a system that did not value people differently due to their differing abilities would also remove a lot of the pressure that is currently dumped on women.

A system of equal access, opportunity, value, for people of all types of abilities, would be radically better for people currently oppressed under this gender-based system.

And when you reinforce the ability-based system of oppression, you make things worse for the women living under it.

… just sayin’.

(Cross-posted at three rivers fog.)