Daily Archives: 27 January, 2010

The Cult of Busy: Introductory Thoughts

The first time I noticed the correlation between “busy” and “important” was when a friend of mine boasted of her first “cardiac incident” at the age of 27. She was a very important person, after all. So important that she had to be on call 24 hours a day for her workplace, had to arrange everything around the schedule of her workplace, and rushed back to work after being released from the hospital, in case anything had happened that needed only her to fix. [1. This wasn’t actually true, just how she perceived things. When she was fired several months later and the place she worked at was better for it, she was the only one surprised.]

Since I judge my worth the same way, I don’t really blame her. The Cult of Busy tells us that worthwhile people have full daytimers, with every minute packed. Want to do lunch with friends? I’ll have to plan that week in advance. Coffee date? Only if I can fit it in between my full-time job and my hours of volunteering. And I simply can’t agree to anything else right now, have I told you how busy and overwhelmed I am with all my important things to do?

There are things I think are wrong with this pace of life for everyone (including me, but as I said, I totally buy into it), but it’s especially difficult when it comes to people with disabilities. When you value someone’s worth as a human being on how much they can squeeze into a day, what value do you place on someone who cannot do all of that? And what value do you place on people who attempt to do enough to keep up with everyone else, but fail?

We value certain things in Western Society, and one of those things is How Important You Are, and how we judge that importance is how busy you are – how in demand you are – how many people want to know what you have to say.

One of the ways this manifests is around Work (by which I mean paid labour outside of the home – the issues of unpaid labour within the home are a bit different, and we all know that unpaid homemaking is very undervalued, and people have some odd ideas about home offices and small business run out of them, and then we get into volunteering and– well, I mean paid labour outside the home for now). “What do you do?” means “What is your job?”, and if you can’t work full-time because of a disability, well. Well. That’s so sad. What do you do all day, after all? (How important can you be? What will I talk to you about if I can’t talk to you about your job? Gosh, you must be lazy. It must be nice to sit around all day!)

And then things get internalized. “I don’t have a job. I’m not contributing. I’m not important. I better make myself small and inoffensive in some way so that no one thinks I’m a burden. I don’t really have a lot of worth as a person because I’m not contributing.”

The Cult of Busy reinforces a lot of abliest ideas about who is important, and who is not, which means that the people with disabilities who can’t do It All (whatever It All is) are by default not important. They don’t count. They don’t need to be considered in how you build a business, say, because they’re never going to work for you and never going to spend money there because they aren’t important. They’re not worth including in your campaign about social justice issues because they don’t work so they don’t really contribute and even if they did, no one cares about what they have to say anyway because they aren’t important. If they were important, they’d be Busy. And Busy means something very specific: As many hours of the day filled with Stuff To Do as possible.

I want to write a lot about the Cult of Busy, in a variety of ways. How The Cult of Busy feeds into the idea that people who work less than 40 (or 60 or 80) hours a week are “getting away with something” and “not actually committed to their jobs”. How if you’re not working you “should” be volunteering, because otherwise you’re doing “nothing” with your day. How we disdain people who “just sit around all day”. How people like me end up confusing “busy” with “important and meaningful” to the point where we make ourselves ill doing too many things and being torn in too many directions.

Be busy. Be more. Be better.

[Be exhausted. Be unwell. Be harmed.]

Recommended Reading for January 27th

Warning: Offsite links are not safe spaces. Articles and comments in the links may contain ableist, sexist, and other -ist language of varying intensity. Opinions expressed in the articles may not reflect the opinions held by the compiler of the post. I attempt to provide extra warnings for certain material present in articles, but your triggers/issues may vary.

Laura Hershey: Women and Disability and Poetry (Not Necessarily in That Order)

For decades, the disability community has squabbled over the extent to which disabilities are experienced as inherent problematic biological conditions, or strictly as a social minority status. We’ve also debated whether to distinguish sharply between disease and disability, resisting their conflation as a symptom of medical colonization of our lives; or to embrace chronic and acute illness as another dimension of the disability experience. […]

For me, this is why we need poetry. Ultimately, dichotomies can’t be resolved by turning up the volume, drowning out disagreements and inconsistencies. To get anywhere near a truthful representation of our lives, we need nuance, texture, color, smell. We need open-ended questions, unexpected answers, unlikely combinations. We need prickly, messy, mundane details, rendered in words as fresh as rainfall. We need the wheeling narrative, the dust-flecked sunlit lyric.

StarNews Online: Social media opens social world to elderly, disabled

Social media is developing into more than a pastime for the elderly and disabled. If implemented properly, it could become their social lifeline. For some residents at Davis Health Care Center and Champions Assisted Living in Porters Neck, this is already the case. […]

Sixty-nine-year-old Edsel Odom suffered two simultaneous strokes on May 2, 2003. He now uses a wheelchair and clicks a mouse with his single functioning thumb. To type, he uses an infrared device mounted on a baseball cap.

Sydney Morning Herald: Haiti hospital faces psychiatric surge

The Haitian government’s Mars and Kline Psychiatric Centre was founded in 1958, which might just be when its wards received their last coat of paint, and was in a desperate situation even before the January 12 catastrophe.[…]

“This is a completely exceptional situation,” said Jean-Wihelde, “but our problems began long before the earthquake. “The house was designed for 36 boys and 11 women, but people kept coming, and we had 150 people,” he explained, adding that at any one time 500 outpatients would also visit for consultations and medication.

“Behavioural difficulties, hallucinations, cocaine addiction, people with psychological disorders, things like that,” he said. “They were terrified in the quake. They are mentally unwell, and this made it worse.”

RocNow: Gov. Paterson meets with upstate news organizations

Paterson was greeted by about 75 disability rights protesters chanting, “Don’t cut our freedom,” this afternoon when he arrived at the WXXI studios.

The protesters want the governor to drop a proposed cap on care for a person with disabilities. There currently is no limit on how much time someone can be cared for by a personal care aide, but Paterson wants to limit that to 12 hours a day.

The protesters say that the proposed cap would force more people into costly nursing home care.

Inside Bay Area: CityWise: Oakland settles lawsuit with disability rights group

City officials reached a settlement this week with the Berkeley-based Disability Rights Advocates over a 2007 lawsuit that said the city was ill-prepared to help disabled people in the event of a disaster such as an earthquake or firestorm.

The agreement requires Oakland to implement programs to specifically address the needs of the city’s disabled residents in its emergency preparedness plans. […] Oakland took stock of what shelter space it had available for those with disabilities after the lawsuit was filed. The city also hired a consultant to evaluate Oakland’s capacity to help disabled residents and to make recommendations on how to improve.

Karla Gilbride, an attorney for Disability Rights Advocates, said that when the lawsuit was filed, Oakland had an array of deficiencies in its emergency plans.

Bad Cripple: Ashley Treatment and the Parental Update

What the parents have done is make some inroads among four men–Allen, Diekema, Fost and Kappy. All their references in medical journals refer to these men alone. No mention is made of a single critic. Hundreds of “supportive” and private emails are referred to on their blog yet not a single critic is identified or worthy of passing reference. One possible explanation for this is the fact the parents accept without question a medical model of disability.

More on the “Ashley Treatment”: