But the worst of my learning to write about disability took place much earlier, when I spoke about it for the very first time early last year. Because there is a great deal of shame associated with disability. Society holds it something to be hidden away, denied. When it’s to be spoken about, the speaking must come from parents, carers and advocates, not the people concerned themselves. I had internalised a great deal of that shame.

This. I still find it hard to write much about my own disability. I’m more open to acknowledging to myself that my challenges are valid, but I still don’t talk or write about it that much.