Daily Archives: 20 January, 2010

Seven reactions to reviews of Rachel Axler’s “Smudge”

On-stage scene from the play. A man and woman stand looking into a pram, the woman with a many-limbed plush toy. The pram has a wild series of tubes and wires snaking out of it.

I’ve been shaking my head over the press for Rachel Axler’s new hipster-ableist play, Smudge. Here’s a lightning tour, with my response

s at the end. Emphases are mine.

In ‘Smudge,’ Baby’s disabled, and mom’s not much better, from Newsday:

Most couples look at the sonogram of their impending baby to see whether it’s a boy or a girl. But when Colby and her husband, Nick, scrutinize the picture of the life in her womb for an answer to the “what is it?” question, they are appalled to realize that they mean it. Literally.

Rachel Axler’s “Smudge,” the very dark 90-minute comedy at the Women’s Project, aims to be part horror movie, part domestic relationship drama. Their baby, a girl, arrives unbearably deformed, with no limbs and one big eye. Nick (Greg Keller) bonds with the unseen character in the pram encircled with tubes, and names her Cassandra. Colby (Cassie Beck, in another of her achingly honest performances) attempts to protect herself from the agony through brutal humor, maniacally snipping the arms off baby clothes and taunting the “smudge” until “it” miraculously responds. Or does it? […]

BOTTOM LINE The unthinkable, faced with wit but not enough depth

More, from Variety:

Title comes from the first word that comes to mind when Colby (Cassie Beck) gets a glimpse of her infant daughter, grotesquely described as having no arms or legs, an undeveloped skeletal structure and only one (beautiful, luminous blue-green) eye in her misshapen head.

More, from Time Out New York:

She is nearly indescribably deformed: a purple-grey mass of flesh and hair, with a single, disconcertingly beautiful Caribbean Sea–colored eye. Her horrified mother, Colby (Beck), describes the child as looking “Sort of like a jellyfish. Sort of like something that’s been erased.”

More, from SF Examiner:

Continue reading Seven reactions to reviews of Rachel Axler’s “Smudge”

Recommended Reading for January 20th

Warning: Offsite links are not safe spaces. Articles and comments in the links may contain ableist, sexist, and other -ist language of varying intensity. Opinions expressed in the articles may not reflect the opinions held by the compiler of the post. I attempt to provide extra warnings for certain material present in articles, but your triggers/issues may vary.

A brief obituary at Life as a Hospice Patient, the blog of Judi Chamberlin, psychiatric survivor and rights activist. The comments include tributes from friends, readers, and fellow activists. [via Disability Studies, Temple U]

With deep sadness we want to let you know that Judi died late last night [Saturday]. […]

If you want to mark Judi’s memory in some tangible way, it was her wish that contributions be made to either:

* The National Coalition of Mental Health Consumer/Survivor Organizations
Checks can be made out to: NEC [National Empowerment Center]. Note on the check that it is “for NCMHCSO in honor of Judi Chamberlin. Checks can be mailed to: National Empowerment Center, 599 Canal Street, Lawrence, MA 01840
or
* Visiting Nurse and Community Health
[Checks can be made out to VNCH. Note on the check that it is for “Hospice in honor of Judi Chamberlin”] and can be mailed to:
Visiting Nurse and Community Health, Donations, 37 Broadway, 2nd Floor, Arlington, MA 02474
Or on line.

More about Judi Chamberlin at NPR: Advocate For People With Mental Illnesses Dies

Judi Chamberlin, who died this weekend at age 65, was a civil rights hero from a civil rights movement you may have never heard of. […] Chamberlin’s book [On Our Own] became a manifesto for other patients. But it influenced lots of people in the mental health establishment, too. Today, notes Oaks, it’s common for people with mental illness to have a say. “Most U.S. states now have an office of mental health consumer affairs or something to hear the voice of mental health clients,” says Oaks. “And it certainly is people like Judi that did that.”

Smart Bitches Trashy Books: GS vs. STA: Handicapped Heroines

Good Shit vs. Shit to Avoid is a recommendation thread devoted to books in a specific genre that feature a type of heroine, hero, plot, or locale that is often difficult to find, particularly when that feature is done right. Today, Heather, the awesome, from The Galaxy Express, is looking for handicapped heroines:

“When you have a chance, I’m hoping you can assist me with information about a particular type of romance heroine. I’m thinking my question might be eligible for your HaBO feature. A friend of mine and I were discussing how we’d like to read romances involving a handicapped heroine—one where the heroine gets the hero without any serious cop-outs.”

Delirious Hem: A Preview: This is What a Feminist [Poet] Looks Like Forum #2: This is not my beautiful house; this is not my beautiful wife. by Jennifer Bartlett

Sometimes, I feel like the community has forgotten us! Despite wonderful strides toward inclusion in many areas of feminism, disability is often the overlooked element. The issues of women with disabilities are among the most extreme cases of female abuse in the United States. So, it is shocking to that the pages of MS. Magazine are not full of issues such as forced sterilization or the fact that some women with disabilities have their children forcefully taken away at birth. Many people do still do not know about abusive institutions, such as Willowbrook, which were the norm as late as the 1980’s. The unemployment rate for women with disabilities remains at a steady 70% or more. […]

On a more mundane note, women with disabilities are consistently absent from women-only poetry conferences, journals, and anthologies that champion diversity. When popular feminist journals do write about people with disabilities, they often use outdated, offensive language; confined to a wheelchair, wheelchair bound, and, my personal favorite, ‘the disabled.’

BarbManning.net: Nevermind Healthcare – Should Visitability be a Federal Law?

What is Visitability?

“It defies logic to build new homes that block people out when it’s so easy and cheap to build new homes that let people in.” — Rep. Jan Schakowsky (D. -IL)

The Americans with Disabilities Act requires access for people with disabilities for all new multi-family dwellings and a small percentage (5%) of single-family homes constructed using public funds. This law obviously does not address the vast majority of single-family housing in the United States. Visitability seeks to make new housing accessible by having it meet three basic conditions: one zero-step entrance with a wheelchair approachable route, hallways and doorways wide enough for safe navigation by wheelchairs, and one wheelchair-accessible bathroom on the main floor. […]

In March 2009, Representative Jan Schakowsky re-introduced the Inclusive Home Design Act (HR 1408) to Congress. For new homes built with federal assistance, this bill supplements the existing 5% requirement of fully accessible units by mandating visitability in all of the other units. If this bill becomes law, it will make subtle, but substantial changes in how America constructs new homes.

L.A. Times: Families of autistic kids sue over therapy’s elimination

Families of autistic children in eastern Los Angeles County filed a class-action lawsuit today against the nonprofit agency that provides them with state-funded services, alleging that it had illegally discontinued their therapy for the disorder.

The agency, the Eastern Los Angeles County Regional Center, informed more than 100 families late last summer that the therapy — known as the DIR model, or “developmental, individual difference, relationship-based” — was being eliminated for their children because of state budget cuts.