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	<title>Comments on: Wanted: Young, Healthy Organs for Transplant</title>
	<atom:link href="http://disabledfeminists.com/2010/01/05/wanted-young-healthy-organs-for-transplant/feed/" rel="self" type="application/rss+xml" />
	<link>http://disabledfeminists.com/2010/01/05/wanted-young-healthy-organs-for-transplant/</link>
	<description>FWD (feminists with disabilities) for a way forward</description>
	<lastBuildDate>Thu, 30 Dec 2010 17:29:21 +0000</lastBuildDate>
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		<title>By: cathy</title>
		<link>http://disabledfeminists.com/2010/01/05/wanted-young-healthy-organs-for-transplant/#comment-6017</link>
		<dc:creator>cathy</dc:creator>
		<pubDate>Fri, 08 Jan 2010 21:06:54 +0000</pubDate>
		<guid isPermaLink="false">http://disabledfeminists.com/?p=2204#comment-6017</guid>
		<description>Let&#039;s not forget that the US bans gay men from donating blood and tissue.  Though, generally, one is allowed to put the &#039;organ donor&#039; stamp on one&#039;s liscense, gay men are almost never allowed to give organs or blood (due to asinine US law, not health problems).  So, if this is implimented in the US, queer men will also be disadvantaged.</description>
		<content:encoded><![CDATA[<p>Let&#8217;s not forget that the US bans gay men from donating blood and tissue.  Though, generally, one is allowed to put the &#8216;organ donor&#8217; stamp on one&#8217;s liscense, gay men are almost never allowed to give organs or blood (due to asinine US law, not health problems).  So, if this is implimented in the US, queer men will also be disadvantaged.</p>
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		<title>By: Kaitlyn</title>
		<link>http://disabledfeminists.com/2010/01/05/wanted-young-healthy-organs-for-transplant/#comment-5904</link>
		<dc:creator>Kaitlyn</dc:creator>
		<pubDate>Thu, 07 Jan 2010 01:44:53 +0000</pubDate>
		<guid isPermaLink="false">http://disabledfeminists.com/?p=2204#comment-5904</guid>
		<description>Many TABs cannot give blood in the US (or just to the redcross? I&#039;m not sure and I&#039;m hungry and tired and sore) because they had the gall to be in Europe during the mad cow scare (early &#039;90s).

And since I have chronic problems, I have no problem giving blood (they certainly take a lot, why not use it?) but nope. Military people who went abroad from the East Coast are most affected and in the military, they own your body, so by the time your kid&#039;s school drive rolls around, you&#039;re ready.

Last spring, one teacher had an extra credit assignment - give blood at the on campus blood bank (lifeblood? redcross? hello brain, wakey wakey), get ten points. I almost jumped across the desk, I was so pissed! However, you could get the points if you got somebody else to give blood. (Which I did. Hated that class, needed all possible points.)

Organ donation - I checked it on my state ID card, but I don&#039;t know if they&#039;ll want anything.

Naamah - I&#039;d like to say I don&#039;t believe (not that you&#039;re lying) the attitudes you described. Except... yeah. I can see it happening. 

In my family, my mom and I are comfortable with what we&#039;ll do with our bodies after we die - let others live, go to a medical school for slicing and dicing... burials are too expensive and wasteful. My sister isn&#039;t mature enough for such a discussion. I wonder what she has on her driver&#039;s license.</description>
		<content:encoded><![CDATA[<p>Many TABs cannot give blood in the US (or just to the redcross? I&#8217;m not sure and I&#8217;m hungry and tired and sore) because they had the gall to be in Europe during the mad cow scare (early &#8217;90s).</p>
<p>And since I have chronic problems, I have no problem giving blood (they certainly take a lot, why not use it?) but nope. Military people who went abroad from the East Coast are most affected and in the military, they own your body, so by the time your kid&#8217;s school drive rolls around, you&#8217;re ready.</p>
<p>Last spring, one teacher had an extra credit assignment &#8211; give blood at the on campus blood bank (lifeblood? redcross? hello brain, wakey wakey), get ten points. I almost jumped across the desk, I was so pissed! However, you could get the points if you got somebody else to give blood. (Which I did. Hated that class, needed all possible points.)</p>
<p>Organ donation &#8211; I checked it on my state ID card, but I don&#8217;t know if they&#8217;ll want anything.</p>
<p>Naamah &#8211; I&#8217;d like to say I don&#8217;t believe (not that you&#8217;re lying) the attitudes you described. Except&#8230; yeah. I can see it happening. </p>
<p>In my family, my mom and I are comfortable with what we&#8217;ll do with our bodies after we die &#8211; let others live, go to a medical school for slicing and dicing&#8230; burials are too expensive and wasteful. My sister isn&#8217;t mature enough for such a discussion. I wonder what she has on her driver&#8217;s license.</p>
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		<title>By: Kassiane</title>
		<link>http://disabledfeminists.com/2010/01/05/wanted-young-healthy-organs-for-transplant/#comment-5888</link>
		<dc:creator>Kassiane</dc:creator>
		<pubDate>Wed, 06 Jan 2010 20:49:45 +0000</pubDate>
		<guid isPermaLink="false">http://disabledfeminists.com/?p=2204#comment-5888</guid>
		<description>I don&#039;t think they want my organs anyway, but I flat out told them that as long as they&#039;re discriminating against people with mental and neurological illnesses, they can&#039;t have &#039;em. I don&#039;t care if my liver is going to someone who (shock horror!) has a history of psychiatric illness. If they need it, they are just as deserving as anyone else, and presuming I&#039;m done with it, then...well, I&#039;m certainly not using it.

But until they can assure me that they aren&#039;t still making those kinds of value judgements on deserving sick people, I can&#039;t do it. (And my blood, well, I don&#039;t ever meet criteria).</description>
		<content:encoded><![CDATA[<p>I don&#8217;t think they want my organs anyway, but I flat out told them that as long as they&#8217;re discriminating against people with mental and neurological illnesses, they can&#8217;t have &#8216;em. I don&#8217;t care if my liver is going to someone who (shock horror!) has a history of psychiatric illness. If they need it, they are just as deserving as anyone else, and presuming I&#8217;m done with it, then&#8230;well, I&#8217;m certainly not using it.</p>
<p>But until they can assure me that they aren&#8217;t still making those kinds of value judgements on deserving sick people, I can&#8217;t do it. (And my blood, well, I don&#8217;t ever meet criteria).</p>
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		<title>By: Naamah</title>
		<link>http://disabledfeminists.com/2010/01/05/wanted-young-healthy-organs-for-transplant/#comment-5851</link>
		<dc:creator>Naamah</dc:creator>
		<pubDate>Wed, 06 Jan 2010 09:00:13 +0000</pubDate>
		<guid isPermaLink="false">http://disabledfeminists.com/?p=2204#comment-5851</guid>
		<description>I don&#039;t donate my squeaky-clean blood so that only other squeaky-clean people can have it.  Seriously, Jeez.

I have heard people complain that if they donated blood (or organs, but the conversations I had were about blood) how would they know it wouldn&#039;t go to [category of &quot;undesirable&quot; and &quot;undeserving&quot; persons, typically a racial minority, but possibly also someone with a disease that is &quot;their fault&quot;].  That almost physically hurts me to hear.  It makes me so angry, and hurts my feelings so deeply.  Is that REALLY their reason for not donating?  What does that say about a person? I don&#039;t understand it at all.  I don&#039;t care who my blood goes to.  Just let it go to someone who needs it!  And if I want to donate, nobody should say a goddamn thing about it.  Yes, I&#039;ve been criticised FOR giving blood.  What the fuck?

On the flip side, I am not an organ donor, though I would probably be eligible.  I don&#039;t much appreciate being shamed on that point, as I have what are, to me, quite compelling reasons not to do that which I do not need to share with or justify to anyone else, ever, at all.  I certainly don&#039;t want an &quot;opt-out&quot; system in place, though I can understand the grief and desperation that leads to suggesting such measures.  I have enough of a problem trusting that my wishes will be followed without having to worry about blanket assumptions being made that include doing things to my dead/dying body without my permission.

So, yes, here, as with so many other areas of life, a person&#039;s wishes and situations should be respected either way.  Loved this post.</description>
		<content:encoded><![CDATA[<p>I don&#8217;t donate my squeaky-clean blood so that only other squeaky-clean people can have it.  Seriously, Jeez.</p>
<p>I have heard people complain that if they donated blood (or organs, but the conversations I had were about blood) how would they know it wouldn&#8217;t go to [category of "undesirable" and "undeserving" persons, typically a racial minority, but possibly also someone with a disease that is "their fault"].  That almost physically hurts me to hear.  It makes me so angry, and hurts my feelings so deeply.  Is that REALLY their reason for not donating?  What does that say about a person? I don&#8217;t understand it at all.  I don&#8217;t care who my blood goes to.  Just let it go to someone who needs it!  And if I want to donate, nobody should say a goddamn thing about it.  Yes, I&#8217;ve been criticised FOR giving blood.  What the fuck?</p>
<p>On the flip side, I am not an organ donor, though I would probably be eligible.  I don&#8217;t much appreciate being shamed on that point, as I have what are, to me, quite compelling reasons not to do that which I do not need to share with or justify to anyone else, ever, at all.  I certainly don&#8217;t want an &#8220;opt-out&#8221; system in place, though I can understand the grief and desperation that leads to suggesting such measures.  I have enough of a problem trusting that my wishes will be followed without having to worry about blanket assumptions being made that include doing things to my dead/dying body without my permission.</p>
<p>So, yes, here, as with so many other areas of life, a person&#8217;s wishes and situations should be respected either way.  Loved this post.</p>
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		<title>By: lilacsigil</title>
		<link>http://disabledfeminists.com/2010/01/05/wanted-young-healthy-organs-for-transplant/#comment-5841</link>
		<dc:creator>lilacsigil</dc:creator>
		<pubDate>Wed, 06 Jan 2010 03:16:24 +0000</pubDate>
		<guid isPermaLink="false">http://disabledfeminists.com/?p=2204#comment-5841</guid>
		<description>I&#039;m certainly not able to donate blood and I suspect most of my organs, but I&#039;m signed up anyway. Maybe my corneas will be usable. I would absolutely support an &quot;opt-out (plus family counselling)&quot; national organ donor program over the Israeli &quot;your body oarts are insurance&quot; policy! But Anjak&#039;s comment is the ideal.</description>
		<content:encoded><![CDATA[<p>I&#8217;m certainly not able to donate blood and I suspect most of my organs, but I&#8217;m signed up anyway. Maybe my corneas will be usable. I would absolutely support an &#8220;opt-out (plus family counselling)&#8221; national organ donor program over the Israeli &#8220;your body oarts are insurance&#8221; policy! But Anjak&#8217;s comment is the ideal.</p>
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		<title>By: Rebecca</title>
		<link>http://disabledfeminists.com/2010/01/05/wanted-young-healthy-organs-for-transplant/#comment-5840</link>
		<dc:creator>Rebecca</dc:creator>
		<pubDate>Wed, 06 Jan 2010 03:09:44 +0000</pubDate>
		<guid isPermaLink="false">http://disabledfeminists.com/?p=2204#comment-5840</guid>
		<description>How does donor registration work in Israel? Whenever I&#039;ve gotten a new driver&#039;s license at the DMV, they always just ask if I want to be an organ donor. I always say yes, so I get a sticker; this has been the case in several different states where I&#039;ve lived. I always figure that maybe by the time I die they&#039;ll have figured out a use for my organs. If the process in Israel is as lax as that, I don&#039;t see a problem with it-- that is, if you just need to express a willingness to donate your organs, not the ability.</description>
		<content:encoded><![CDATA[<p>How does donor registration work in Israel? Whenever I&#8217;ve gotten a new driver&#8217;s license at the DMV, they always just ask if I want to be an organ donor. I always say yes, so I get a sticker; this has been the case in several different states where I&#8217;ve lived. I always figure that maybe by the time I die they&#8217;ll have figured out a use for my organs. If the process in Israel is as lax as that, I don&#8217;t see a problem with it&#8211; that is, if you just need to express a willingness to donate your organs, not the ability.</p>
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		<title>By: amandaw</title>
		<link>http://disabledfeminists.com/2010/01/05/wanted-young-healthy-organs-for-transplant/#comment-5837</link>
		<dc:creator>amandaw</dc:creator>
		<pubDate>Wed, 06 Jan 2010 02:13:00 +0000</pubDate>
		<guid isPermaLink="false">http://disabledfeminists.com/?p=2204#comment-5837</guid>
		<description>&lt;blockquote&gt;I would agree that it would be a rather unfair law if it were only the individual taken into account, but I do think that allowing first-degree relatives’ choices to act as collateral for an ineligible or unwilling participant grants greater leniency and fairness.&lt;/blockquote&gt;

What? No it doesn&#039;t. It means you&#039;re even further fucked if your family isn&#039;t healthy too.</description>
		<content:encoded><![CDATA[<blockquote><p>I would agree that it would be a rather unfair law if it were only the individual taken into account, but I do think that allowing first-degree relatives’ choices to act as collateral for an ineligible or unwilling participant grants greater leniency and fairness.</p></blockquote>
<p>What? No it doesn&#8217;t. It means you&#8217;re even further fucked if your family isn&#8217;t healthy too.</p>
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		<title>By: Caitlin</title>
		<link>http://disabledfeminists.com/2010/01/05/wanted-young-healthy-organs-for-transplant/#comment-5834</link>
		<dc:creator>Caitlin</dc:creator>
		<pubDate>Wed, 06 Jan 2010 02:02:03 +0000</pubDate>
		<guid isPermaLink="false">http://disabledfeminists.com/?p=2204#comment-5834</guid>
		<description>&quot;Donor 1&quot; has been on my health card as long as I can remember - though when I hit sixteen or eighteen (I can&#039;t recall which) I got to decide for myself if I wanted to be a donor.  My brother&#039;s card had always said &quot;Donor 2&quot;, but after I researched I decided to stick with Donor 1 - all viable organs and tissues.  If I&#039;m dead, I don&#039;t need them, and maybe they&#039;d improve someone else&#039;s life.

I&#039;m definitely uncomfortable with the donation system in Israel as described in this post and above comments.  There&#039;s way too much room for abuse in my opinion.

I like the idea of being a donor being the default, but definitely with the option to opt-out for religious/ethical/whatever reasons.</description>
		<content:encoded><![CDATA[<p>&#8220;Donor 1&#8243; has been on my health card as long as I can remember &#8211; though when I hit sixteen or eighteen (I can&#8217;t recall which) I got to decide for myself if I wanted to be a donor.  My brother&#8217;s card had always said &#8220;Donor 2&#8243;, but after I researched I decided to stick with Donor 1 &#8211; all viable organs and tissues.  If I&#8217;m dead, I don&#8217;t need them, and maybe they&#8217;d improve someone else&#8217;s life.</p>
<p>I&#8217;m definitely uncomfortable with the donation system in Israel as described in this post and above comments.  There&#8217;s way too much room for abuse in my opinion.</p>
<p>I like the idea of being a donor being the default, but definitely with the option to opt-out for religious/ethical/whatever reasons.</p>
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		<title>By: Mel</title>
		<link>http://disabledfeminists.com/2010/01/05/wanted-young-healthy-organs-for-transplant/#comment-5831</link>
		<dc:creator>Mel</dc:creator>
		<pubDate>Wed, 06 Jan 2010 01:39:59 +0000</pubDate>
		<guid isPermaLink="false">http://disabledfeminists.com/?p=2204#comment-5831</guid>
		<description>I don&#039;t think first-degree relatives helps much for people with small families or people with religious objections (whose first-degree relatives may well share them), for example.  And even if that makes the system less unfair, it&#039;s still unfair. It just seems like a terrible system to me.

(Incidentally, at least in the states I&#039;ve lived in, &quot;organ donation&quot; covers tissue donation and medical research as well, so even if one&#039;s organs aren&#039;t suitable for transplant, it can still be worth signing up if you are inclined to support that.)

I agree with anjak- j that death and associated issues really something that needs to be talked about more.  I think advance directives should be highly encouraged from 18 onward--we never know what could happen (and they&#039;re a kindness to our families as well, or at least my dad&#039;s was for me--although I signed forms as medical PoA, I knew that everything I was doing was what he had wanted, so I didn&#039;t have to make any hard decisions or worry about whether I was making the right choices).</description>
		<content:encoded><![CDATA[<p>I don&#8217;t think first-degree relatives helps much for people with small families or people with religious objections (whose first-degree relatives may well share them), for example.  And even if that makes the system less unfair, it&#8217;s still unfair. It just seems like a terrible system to me.</p>
<p>(Incidentally, at least in the states I&#8217;ve lived in, &#8220;organ donation&#8221; covers tissue donation and medical research as well, so even if one&#8217;s organs aren&#8217;t suitable for transplant, it can still be worth signing up if you are inclined to support that.)</p>
<p>I agree with anjak- j that death and associated issues really something that needs to be talked about more.  I think advance directives should be highly encouraged from 18 onward&#8211;we never know what could happen (and they&#8217;re a kindness to our families as well, or at least my dad&#8217;s was for me&#8211;although I signed forms as medical PoA, I knew that everything I was doing was what he had wanted, so I didn&#8217;t have to make any hard decisions or worry about whether I was making the right choices).</p>
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		<title>By: anjak-j</title>
		<link>http://disabledfeminists.com/2010/01/05/wanted-young-healthy-organs-for-transplant/#comment-5823</link>
		<dc:creator>anjak-j</dc:creator>
		<pubDate>Wed, 06 Jan 2010 00:19:03 +0000</pubDate>
		<guid isPermaLink="false">http://disabledfeminists.com/?p=2204#comment-5823</guid>
		<description>I can&#039;t agree with that form of opt-in at all.  From a personal standpoint, I likely can&#039;t donate myself and I have no first degree relative who would be eligible to be on the donor list: a. since I have no blood siblings - only step-siblings, and b. my mother is ineligible as a result of multiple illnesses.  (I can&#039;t speak to the other parent&#039;s health - I&#039;ve not seen him since the divorce.)  

I&#039;m pretty sure I&#039;m not alone in being in this kind of situation, and I don&#039;t think my transplant chances, should I ever need one, should rest on my ability to donate or that of my immediate family.

I&#039;ve always believed the answer to increasing the pool of prospective donors isn&#039;t in &#039;opt-out&#039; schemes or coercing people into organ donation.  It is in talking more freely about death and people&#039;s wishes for their body when they die.  And in actually listening to people&#039;s wishes without prejudice.  Or in the ability to sign advanced consent forms to be placed in your medical records so that your wishes are carried out as you intended and not bypassed by family members who wouldn&#039;t listen or with differing beliefs.</description>
		<content:encoded><![CDATA[<p>I can&#8217;t agree with that form of opt-in at all.  From a personal standpoint, I likely can&#8217;t donate myself and I have no first degree relative who would be eligible to be on the donor list: a. since I have no blood siblings &#8211; only step-siblings, and b. my mother is ineligible as a result of multiple illnesses.  (I can&#8217;t speak to the other parent&#8217;s health &#8211; I&#8217;ve not seen him since the divorce.)  </p>
<p>I&#8217;m pretty sure I&#8217;m not alone in being in this kind of situation, and I don&#8217;t think my transplant chances, should I ever need one, should rest on my ability to donate or that of my immediate family.</p>
<p>I&#8217;ve always believed the answer to increasing the pool of prospective donors isn&#8217;t in &#8216;opt-out&#8217; schemes or coercing people into organ donation.  It is in talking more freely about death and people&#8217;s wishes for their body when they die.  And in actually listening to people&#8217;s wishes without prejudice.  Or in the ability to sign advanced consent forms to be placed in your medical records so that your wishes are carried out as you intended and not bypassed by family members who wouldn&#8217;t listen or with differing beliefs.</p>
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