Daily Archives: 28 December, 2009

Recommended Reading for December 28

Warning: Offsite links are not safe spaces. Articles and comments in the links may contain ableist, sexist, and other -ist language of varying intensity. Opinions expressed in the articles may not reflect the opinions held by the compiler of the post.

* ACTION ITEM for USAns: Corina Becker at No Stereotypes Here – Neurodiversity activist blog: Youngest Autistic Nominee on National Council on Disability

Not too long ago I posted the Press Release from the White House announcing that Ari Ne’eman of the Autistic Self Advocacy Network has been nominated by President Obama to the National Council on Disability. […] If you haven’t gathered from all the ruckus that’s being made across the Internet, this is a big deal, for two reasons:

The first is that he is the first openly autistic appointee, breaking the unsaid barriers keeping autistic people from being a part of the decision process regarding, well, everything about our lives. This marks a major step in the inclusion of autistic people as a part of society, not just in terms of social inclusion, but also on the political and governmental level, and recognizes us as citizens of the countries we live in, with the rights, freedoms and responsibilities that being a citizen includes. […]

Yet, because he doesn’t see autism and disabilities as an automatically negative element, but instead as a person’s difference that can result in unique challenges and difficulties in a setting that is ill-suited to accommodate and support individuals, there are groups out there who would rather Ari not be a member of the NCD. Actually, that’s a bit of an understatement; they are venomously against Ari and the neurodiversity movement of thought.

But of course, for returning readers of this blog, this really should not be a surprise. And of course, these people are exercising their right of free speech and protestation to encourage people to write to their Senators, stating that they are against Ari.

Now, this is up to each of you, but I would ask people who support Ari, even marginally, to contact their Senators and give them a balanced view on this, in that there are members of the autistic and cross-disability community who support Ari.

Sarah at Cat in a Dog’s World: On Failing Girlhood: Thoughts on Gender & Disability

My own pale legs bore thick, dark hair well into my teens until someone informed me that my body’s natural hair was in fact repulsive and needed to be removed from sight. My mother said I looked like a European woman, and I’m still not sure how that is entirely a bad thing. Of course, all methods of removing said body hair involved unpleasant sensory input and required that I pay more attention to such things than I felt at all inclined to do.

io9: 20 Science Fiction Characters Who Got Their Legs Back

Chances are, you’ve come across lots of SF stories where a disabled person regains the ability to walk in some fantastical way. Usually it’s a guy, and his ability to stand up on his two legs is portrayed as a reclaiming of his virility and power. Often times, the disabled hero regains full mobility along the way towards becoming super-powered — or as part of a package of superpowers.

Express.co.uk: Outrage at £250 Tax on Mobility Scooters

CAMPAIGNERS are today launching a fresh attempt to reverse a £250 EU tax which puts mobility scooters in the same class as Formula One racing cars. […]

Equipment for the ­disabled is normally exempt from tax.

Spearheading the latest attempt to overturn a tax that classes scooters as ­leisure vehicles like racing cars and so attract a 10 per cent import duty, is Scottish Parliament MP Bill Wilson.

Denver Post: Greene: Colo. funding decision stymies disabled supermom

At 38, she’s deaf and legally blind, though you’d never know it. She has a progressive neuromuscular disease that requires her to use a ventilator to breathe and a wheelchair to get around. She’s a talented lawyer and leading advocate for disabled parents in Colorado. She has adopted three daughters of her own, all with disabilities. And she’s raising a 15-year-old foster child who faced adolescence institutionalized until Lucas brought her home to Windsor, where she’s now thriving. […]

Lucas, no doubt, will cringe at being described in such superlatives, the embodiment of the untiring supercrip. Getting to work, getting things done and getting home each day are her life, real life, however rewarding or difficult. It’s what she does, just like the rest of us.

The state apparently takes a different view.

On Dec. 3, Lucas underwent surgery to insert a tracheotomy in her neck. The tubing gets blocked and disconnected, especially when she’s sleeping. Before the trach, Medicaid had paid $7,762 a month for an aide 12 hours a day who helps Lucas bathe and dress, tend to her health care needs and run her busy household. The state agreed to boost her allocation to about $15,000 to pay for the 24-hour care she now needs to make sure air is pushing into her lungs. But officials wouldn’t authorize payment, seeking instead to place her in a nursing home indefinitely.

Voice Of America: Sailors With Disabilities Ready to Tackle Classic Australian Yacht Race

Blind and paraplegic sailors as well as others with physical disabilities will crew a boat in one of the world’s great ocean events, the annual Sydney to Hobart yacht race. The race, which starts on Saturday, is one of the toughest competitions of its kind anywhere.

Berkeley Daily Planet: Caltrans Settles Class Action Disability Access Lawsuit

In a landmark achievement, Caltrans announced Tuesday a billion dollar settlement agreement with disability rights advocates to improve sidewalk access.

Does Outright Speculation Make This Disabled Feminist Angry?

Answer: Yes.

Let’s talk about this piece-of-crap article recently published on that oh-so-“liberal” news n’ culture site, Salon.com. I’m prefacing this post with a warning for ableist language and concepts on the part of the article’s author, Rahul K. Parikh, M.D. The article begins as follows:

There was a time when a celebrity’s sudden death almost invariably meant illegal drugs…[a]nd so it seems with Brittany Murphy, the bubbly and bright actress who died of cardiac arrest at 32.

Yes, it seems. Point is, we don’t know much yet. There are other health-related issues or conditions that can lead to cardiac arrest, but is this acknowledged? Of course not! Parikh continues:

The coroner’s notes allegedly claim a pharmacopia in Murphy’s bathroom cabinet: Topamax (for seizures or migraines), methylprednisolone (a steroid), fluoxetine (an antidepressant), Klonopin (for anxiety), carbamazepine (for seizures or bipolar disorder), Ativan (for anxiety), Vicoprofen (pain reliever), propranolol (for hypertension, migraines or anxiety), Biaxin (an antibiotic), and hydrocodone (a narcotic pain reliever). Gone are the days of shameful crack pipes and empty gin bottles.

OH MY GOD, EVERYBODY PANIC.

Murphy’s medications, like those of [Heath] Ledger and Anna Nicole Smith, are on the shelves of your local drugstore, available with a simple trip to the doctor — or doctors — whom you merely need to convince that you need the stuff. Did one doctor prescribe her those meds? Did 10? We don’t yet know. But as a doctor myself, I just kept wondering (and not for the first time): What if doctors were more like librarians? Would Brittany Murphy still be alive?

Cue scary music! THE DANGER IS ON THE SHELVES OF YOUR LOCAL DRUGSTORE. Nevermind that people with chronic pain conditions and disabilities have to jump through numerous, often ridiculous hoops just to get, say, a month’s supply of medications that help them function and/or live life to the fullest extent possible. As one of these people, I am of the opinion that Parikh is being rather disingenuous here; these drugs, at least for us “average” folk with chronic pain issues, are usually not easy to obtain.

After nattering about how the medical field should follow the example of public libraries when it comes to monitoring people and their books meds, he continues:

One of the many negative consequences of such fragmentation is how ridiculously easy it can be to get drugs. Most doctors know patients who have desperately angled to get a prescription they don’t need, usually highly addictive pain medicines like Percocet or OxyContin. This is what we call “doctor shopping,” hopping from one physician to the next until they find someone willing to write a script. When the supply dries up, they go to another doctor, and then another. One 53-year-old man in California visited 183 doctors and 47 pharmacies in one year to support his addiction to painkillers.

Hey, nice use of anecdata there! What on earth does one 53 year-old guy in California have to do with Brittany Murphy’s situation? As for “most doctors” knowing a patient who has “angled” for meds they “don’t need” (who makes that judgement, I wonder?): cry me a goddamn river. The endless Helen Lovejoy-gasping about ADDICTION!!1 in fact makes it incredibly hard for some of us who need these medications to obtain them, and no amount of 1984-esque War is Peace anecdata–from someone, no less, who is supposed to help people in pain as part of his chosen occupation–is going to change that.

In short, the experiences of people with chronic pain are going be different than those of an able-bodied doctor, but nowhere is this acknowledged in this article–nor is it mentioned in many larger conversations about  painkillers and (possible) ADDICTION!!11.

Most of us who need these medications do not have the energy to doctor-shop. I do not wish to deny that painkiller addiction is a serious problem; it is, for some. Sadly, these sorts of “conversations” on the specter of supposedly widespread PAINKILLER ADDICTION!!!1–much like those focusing on the OBESITY CRISIS!!11–tend to focus entirely too much attention on extreme cases and anecdata, leaving out those who need these medications for legitimate medical reasons, and, I might add, some of whom spend a great portion of time proving said legitimacy in order to show that they are not addicts or doctor-shoppers.

But if “preventing” ADDICTION!11 in able-bodied people via endless hand-wringing about who “really” needs these drugs versus who doesn’t is the number one priority here, that is a problem. Yet again, the needs of those who are judged by society as most “important” or productive or fitting into able-bodied society are taken seriously, and the needs of those who do not fit this mold–because they need painkillers for actual pain and are therefore bad/unproductive/just a bunch of whiners–are ignored, or worse, actively shamed and castigated for things or circumstances that they cannot control.

And, as OuyangDan pointed out so eloquently on this very blog, there are a lot of things that we don’t know about Brittany Murphy’s death. Using her death as a poorly-researched, almost totally speculative “example” of the dangers of painkiller ADDICTION!!11 is not only tasteless, but it distracts from how ridiculously the concerns about painkillers, “legitimacy” and the specter of addiction are often framed by (mostly privileged) people who do not deal with these things in their daily lives.

Less infuriating: Many of the commenters seem to agree that this article and its “speculation” went too far, which is unusual for Salon commenters, as most of them tend to exemplify the worst of privileged white “liberalism” on a regular basis (as you would expect, this includes loads of abled privilege and the anecdata to back up their uninformed opinions).