Daily Archives: 15 December, 2009

Recommended Reading for December 15

Happy Bodies: Dementors [note: some of the videos at link are not transcribed]

Can we please stop talking about non-neuro-typical people as though there is something wrong with them? They may be different, but they are not deficient and attitudes like those expressed in the Autism Speaks video just serve to promote the idea that people with ASD are somehow lesser than neuro-typical people.

Inky Ed: what happened?

He couldn’t have been more than three years old. I watched him as he discreetly looked out of the corner of his eye, checking, peeking, stealing another glance.

He sidled up to Mac, this time for a closer look, him standing, Mac sitting – they were almost nose to nose. A perplexed look formed on his face, something was clearly amiss, he needed to know…

“What happened?” he asked me with wide eyes and hands upturned.

Feminists with Female Sexual Dysfunction: The ugly things people say about FSD

Sometimes there will be something of value to take away from the comments section, especially if an article is intended to be supportive. Someone with personal experience in the matter at hand may point out flaws in an author’s language, or offer resources to more information on the topic at hand. Other times, comments are less than helpful. The comments that stand out the most though, are often the worst, most hurful ones. They are the unavoidable, spotted-too-late Ice Bergs (“Right ahead!”) floating among a sea of free speech.

Gregor Wolbring in M/C Journal: A Culture of Neglect: Climate Discourse and Disabled People

Although climate change will disproportionately impact disabled people, despite the less than stellar record of disaster adaptation and mitigation efforts towards disabled people, and despite the fact that other social groups (such as women, children, ‘the poor’, indigenous people, farmers and displaced people) are mentioned in climate-related reports such as the IPCC reports and the Human Development Report 2007/2008, the same reports do not mention disabled people. Even worse, the majority of the material generated by, and physically set up for, discourses on climate, is inaccessible for many disabled people (Australian Human Rights Commission). […]

Ableism and disablism notions experienced by disabled people can now be extended to include those challenges expected to arise from the need to adapt to climate change. It is reasonable to expect that ableism will prevail, expecting people to cope with certain forms of climate change, and that disablism will be extended, with the ones less affected being unwilling to accommodate the ones more affected beyond a certain point. This ableism/disablism will not only play itself out between high and low income countries, as Desmond Tutu described, but also within high income countries, as not every need will be accommodated.

CNET: Web accessibility no longer an afterthought

Web accessibility has come a long way in the decade since many of these proposals were first floated. It’s still a challenge, however, for the Web community to remember that as it pushes forward with exciting new technologies like HTML5 that could reinvent the Internet experience, it must keep in mind the needs of those who can’t type 60 words per minute, operate a mouse like a scalpel, or see the unobtrusive pop-up windows that point to the next destination on the page.

“As the Web gets more and more dynamic, the accessibility requirements get more and more interesting, and sometimes challenging, to implement,” Brewer said.

ABC: Taxis refusing to pick up disabled people

Disability advocate Lynn Strathie says at a recent forum in Darwin the main complaint was about transport services. She says taxis in Darwin are unreliable, inconsistent and have refused to serve the blind and others with an impairment.

“At that forum we had a person who is totally blind and has an aid dog who continually was refused taxis,” she said.

The executive officer of the Territory’s Taxi Council, Colin Newman, says it is true that some drivers have refused to serve the disabled. “The service is getting better but it is not perfect,” he said.

Why ‘What People Think’ Matters

Permanent Limited Duty is an option that a service member has to being fully medically discharged.  It allows the member to stay active duty on a strict schedule and with very strict limitations of duty.  It allows them to fulfill their contract obligation as opposed to being released from it early.  There are specific criteria that must be fulfilled, including proving a need to be allowed to placed on PERMLIMDU Status.  For me, things like having a minor child who needed insurance and being unmarried and without another source of income would have been sufficient for me to prove a need for PERMLIMDU.  There are other factors involved, including approval from your CO and CoC.

In the year leading up to my Medical Board and subsequent discharge I was in so much pain and so tired all the damn time and overall not coping well with what was going on with my lack of medical care.  On top of all of my work and training and single motherhood was Physical Training (PT), which was increasing because as my body was struggling my readiness standards were falling due to my inability to push through the pain.  As I was forced to ease up I gained a little weight which meant I had to increase my PT.  Increased PT increased my pain, which increased my problems overall, and somewhere along the line something broke completely inside me.  It was a vicious circle of some of the most cruel means of my life.  I needed more PT, but increasing PT caused  more injury that meant I had to decrease the type, intensity and amount of PT my doctors would let me do.  That decrease caused weight gain…you can see where this is going…

Long story short, I had to be put on a day shift and have my hours reduced to half days because I was not doing so well.  While the rest of my friends and peers were moving on to the things that we had now spent over three years training for, things that were going to expand their careers, the actual finish line of all we had worked for, and I was riding a desk.  To be fair, it was a job I really grew to love and something I could see myself doing again.  My direct supervisor was awesome, and our division boss was incredible.  To date he is the most wonderful Senior Enlisted person I have ever had the honor of working for who also happened to be very supportive of my medical process.  But it wasn’t what I had trained for, and the sudden disappearance of all of my friends made that even more heavy for me.  I was devastated that I was missing that.  I felt, once again, like a failure, like my body was a failure.  The career I had worked for was crashing down around me and it seemed I had no one to support me through it.

When you are going through a serious medical Thing (for lack of a better…whatever) you start to notice that people tend to disappear.  I don’t know if it is too hard for them to handle or if they don’t give a fuck or what…but you run out of people who you can call to take you to a doctor’s appointment because whatever medication you are on makes you so dizzy you really shouldn’t drive, or people who you can call to watch your children while you go to physio.  You can’t get someone to hold your hand during an X-ray, let alone get them out for coffee.  While I adamantly maintain that my medical problems and disability were not brought on by depression as some would have you believe, being utterly alone during this time cause me an at the time crushing depression.  Sometimes I still feel it. I literally did not hear from my former friends.  Sometimes if you run into people you used to have energy to club or shop with they bring it up as a polite thing to say, kind of like when people say “How ya doin’?” and never really expect you to answer.  So when they would say “How’s…all your…stuff?” I would tell them, “Oh, it’s a big boring mess, how’re you doing?”.  If I actually did talk about it I would notice that they tended to not really want to talk to me again (even though most of them had to eventually because of my new job).

I still had to take my yearly training.  During my yearly training our annual Evaluations came out.  I was pleasantly surprised to receive a relatively high mark on mine.  My boss apparently thought that I was doing a lot in the hours I was allowed to be there during the day.  I worked as hard as I could with what I had to give, and someone noticed.  I was beginning to feel as though maybe I could still do something productive in the Navy, as if the thoughts of PERMLIMDU Status wouldn’t be the end of the World as I knew it.  I began to seriously consider it.  I was in my annual training with the sister of a friend whom I still had occasional contact with, and who was unhappy with her own eval.  As much as I sympathized with her situation, I understood that due to my circumstances our peer groups were different, and my evaluation was not competitive with hers.  I made it a point to not discuss my eval with her or even bring it up.  But when she asked me point blank about mine, my refusal to answer made her assume that mine was better, and this caused a riff between us that I had hoped to avoid. I felt awful, because she was a really great person whom I had actually though I had made friends with. It is such a tricky thing to make new friends when you are going through so much…

It was very difficult.  Nothing I could say was good enough.  It wasn’t fair, she said.  It was wrong, she said.  I was on the same fitness enhancement, she said, and I didn’t even work shift work, she said.  I only got that mark because I sucked up to my boss, she said, and because I “lucked” into a job above my pay grade, she said.  All she could see were the positive outcomes of what was, for me, a really shitty situation.  The one good thing I had going for me was that someone had need of a body to fill a position when my world fell apart, and that it could have been a semi-permanent thing.

That night I received a phone call from my friend, inviting me to meet her for coffee…something that we hadn’t done in I don’t know how long.  She certainly hadn’t had time for socializing in a long time, it seemed, and I was pleasantly surprised.  We met at the Starbucks near my house, another nicety, so I didn’t have to go far.  She treated and we split a big chocolate brownie, because we shared that superhuman tolerance I brag about.  We had polite chit chat and I really felt great getting to talk to her.

Until she brought up my eval.

She brought me there to defend her sister’s side of the whole thing — to tell me that she didn’t think it was fair that I would try to stay on in an office where I could get unfair evals when the rest of my peers were doing real jobs in the Navy.  I was so ashamed that I didn’t even think to argue on my own behalf.  To tell her that it would have been the best thing for me to do so.  That it would mean that I could still give my Kid insurance and have an income and finish my obligation.  That I would still have some connection to all the work I had put in.  But again, all anyone could see was how my situation was unfair to them (even though, in reality, it wasn’t, since my evaluations had no effect whatsoever, on theirs, in case I haven’t made that clear). No one else could see beyond how they felt, to what it meant for me and my family, to me and all the work I had done. Instead of a legacy of nothing finished, I could give something back. So, I lied. I said that I didn’t have that intention — I said I intended to quit and just go away.

But now I was just ashamed.

I was so embarrassed.  I put on my Brave Face and finished up the visit as well as I could.  I cried the whole way home.  I remember deciding that night that if I chose PERMLIMDU that people would all think that I was some big lazy slacker.  A Bad Cripple, even though some people would never see me as disabled at all, and why should they? I hadn’t even considered that label for myself yet. They would all see me as someone who was there to milk some system and gain some unearned privilege.  I had let someone who was supposed to be my friend shame me into giving up things that I needed for my life. So, when the choice came up with the Medical Board Liason and my Division Officer, I turned it down. Again, I lied. I said that it wasn’t something I thought I could do. It wasn’t what I joined the Navy to do, I said.

It is easy to say “who cares what people think” because we all want to assume that we don’t make decisions based on the feelings of others. But the guilt and shame we feel at the stares and hands of other people is hard to take, so much so that we will often expend our spoons to make the feelings go away — even if it is not to our own benefit.

One thing I should add: Through it all, I learned the value of the friends who come out of seemingly nowhere to support you, just when you least expect it, and the value of friends in Bloglandia. Never let anyone tell you that your blog world friends aren’t as good as Meat World friends. They are all appreciated, especially as the wounds of the lost friends heal. The Meat World friends who held on might be few and far between, but they have been a much needed comfort through the many tears.

It’s a scooter, not a Mack truck

Something I’ve noticed a lot since starting to drive a scooter is how TERRIFIED people are.

Really.

On the sidewalks, I zoom along at six kilometres an hour if I’m unaccompanied and there’s no one around. That feels really zoomy to me, having not locomoted that fast bipedally for quite some time.

But when I’m in a place with people around, or in a shopping centre, I dial the speed right down to minimum. This is actually a fairly slow walking pace.

Yet every single time, people look frightened, and leap out of my way – when they’re not deliberately ignoring me and completely blocking the way while I wait or request passage.

Partners grab their partners to pull them aside, with alarmed looks on their faces, as if tackling them out of the path of a speeding bus in a spectacular Hollywood scene. Parents grab their toddlers and whisk them into arms, glaring at me as if I was charging the kid brandishing a sword and ululating. People in groups jolt visibly when and if they decide to finally acknowledge my existence, and make a giant production, involving a lot of discussion and back and forth and extendings-of-arms, of shuffling each other around to make space for me to get by. People blocking aisles with their angled trolleys ignore me for as long as possible, then make a big deal of moving the trolley, as if they’re compassionate solicitous generous souls who are doing me a giant favour.

People. PEOPLE. It isn’t a drama. It isn’t a big deal. It’s just a scooter with wheels. I’m quite obviously riding slowly and carefully – slower than you’re walking, most of the time. I can see your toddler, your husband, your friend, with these here eyes in my head, and much as I occasionally joke about scooter-mounted flamethrowers, I’m not actually planning to mow them down in cold blood. I don’t take up five metres of side-to-side space; you don’t need to flatten yourself against the wall as if you’re in a commando movie; you need only make enough space for me to get where I’m going.

Just treat me as you would any other human.