Recommended Reading for December 7
People with disabilities, the report says, account for a larger share of those experiencing poverty than people in all other minority, ethnic and racial groups combined and are even a larger group than single parents.
The extra costs associated with living with a disability such as purchasing expensive equipment like wheelchairs and catheters or obtaining specialized medical attention keep many disabled people and their families in poverty, the report notes.
Before I explain what they’ve done to make me say that, I have to provide a bit of background information. You see, back in early August, Autism Speaks sent out this press release encouraging people to submit videos of autistic individuals for use in an upcoming film project. This project had huge names behind it— most notably, award-winning movie director Alfonso Cuarón, the man behind both Children of Men and the third Harry Potter movie— and was to be titled “I Am Autism.” According to Autism Speaks co-founder Suzanne Wright, this project was intended to “shine a bright spotlight on autism,” and was to be unveiled at the United Nations World focus on Autism on September 22.
Seems pretty harmless, right? “I Am Autism.” Sounds like it might be some sort of “We Are The World”-type production, about how we’re all affected by autism in some way. And “shining a bright spotlight”? I actually had a small gleam of hope that Autism Speaks was finally shedding their doom-and-gloom message for something more positive.
Determined outsider triumphs over mainstream medical, using a disabled artist as her protege/experiment. If not dance as therapy, the therapeutic effects of dance. Those are the storylines here; not Mr. Mozgala or even the piece itself — which, btw, I hope to see in June if not in December. So, here, we go.
Mozgala does not gain much space in the article except as a medical project with a weird gait: his CP has “caused him to walk for most of his life like ‘a human velociraptor,’ as he put it: up on his toes, lower extremities turned in, seesawing from side to side to maintain balance.” In fact, we don’t hear much about his acting career; he’s more of a specimen. Once, we’ve got the details of an enslaving CP out the way; the whole thing starts out with an outside: a choreographer who has done with with nontraditional dancers (my phrase) — the article’s author, Neil Genzlinger says “outside normal dance parameters. She sees Mozgala and is “inspired.” Yeah. That thing.
On the other hand, I found the medicalisation of my sex life difficult to deal with – in the end, I was dreading trying to have sex, and tried to only do so the weekend before an appointment because I knew that a doctor was about to ask how it was. I dread to think what the reaction would have been if I had admitted to seeking treatment for this condition while single; there was no opening for the possibility of non-straightness or non-monogamy. It wasn’t until I saw the final doctor, a sex counsellor, that anyone asked whether my relationship was good; even then, the focus was on returning me to a fit state to have penetrative sex and babies. (When I finally took a deep breath and said, “I don’t think I want to go on with this, I have no motivation to cause myself pain every day,” the counsellor replied that other women often went through with it because they were trying to have children. Fair play to them, but she didn’t ask whether I wanted children.)
In the news:
Ambulance Unable to find place for suicidal girl
A mentally ill, suicidal teenager was ferried around for hours by an ambulance crew because no NHS unit would accept her, the BBC has learnt .
The girl eventually had to be taken to a police cell, documents revealed under the Freedom of Information Act show.